For the sake of keeping a record of this journey, I've chosen just to copy the emails I send out after each appointment onto the blog! So if it sounds familiar....it is!
Hello All - Anna had her appointment with the immunologist today and the doctor is not overly concerned about her at this time. 10 more viles of blood were taken and some of it will come back rapidly and others will take 4-6 weeks. At this time, we are praising the Lord that she does have T cells that fight infection, we just don't know how substantial her count is yet. The main test will grow a culture in her blood to determine how well the T cells do their job and what we're working with. So for the next 6 weeks we will do our best to keep Anna out of situations where she could come in contact with "bugs" i.e. mall play areas and sadly church nursery. I am blessed with a family that is willing to chip in and watch Anna on Sundays so I can make it to service or small group and not feel isolated!
The other positive thing that happened today is we met Anna's new speech therapist. Our former therapist couldn't coordinate with our schedule so arranged for this therapist to come several weeks ago. The Lord's timing couldn't be more perfect, this therapist is an expert on speech appraxia and even started a local support group for parents whose children have appraxia. I was thrilled with her this morning and she is not ready to give Anna the diagnosis of appraxia and told me of so many other possiblities for Anna. She made me feel very confidant that we will do whatever it takes to catch Anna up with as little frustration as possible!
So you can probably tell my tone is a little different today. I know we still have lots of opinions to gather and we can't see the whole picture yet, but for today we are praising the Lord for good news and positive feedback. Thank you all for your encouraging emails and calls last week. So many of you ministered to us in so many ways! We are still taking it one day at a time and realizing that the Lord's timing is always perfect.
One last thing, Anna's palate surgery has been scheduled for October 29th. Again, I would like it sooner, but know that the Lord's timing is perfect.
Ready or Not!
5 years ago